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2. The Rights of Unpaid Carers

The Care Act 2014 introduced legal rights for Carers. Regulations under the Care Act set out that an ‘assessment of need’ must be offered to all adults who undertake an informal/unpaid caring role to ensure that the needs of the whole family are considered.

Previously, Carers didn't have a legal right to receive support, although local authorities could provide support at their discretion. This meant that the ability to have an assessment and access a range of support varied depending on where you lived.

The Care Act gives local authorities a responsibility to assess a Carer's need for support. This replaced the law which said the Carer must be providing 'a substantial amount of care on a regular basis' to qualify for an assessment.

This means more Carers are now able to have an assessment. In Cumbria, local Carer Support Organisations, will assess whether the Carer has needs and what those needs may be on behalf of the local authority. This assessment will consider the impact of caring on the Carer.

It will also consider the things a Carer wants to achieve in their own day-to-day life as well as other important issues, such as whether the Carer:

  • Is able or willing to carry on caring
  • Is employed or wants to work or study
  • Or would like to do more socially

The Care Act does not deal with the assessment of people under the age of 18 who care for others. However, Young Carers can be supported under the law relating to children. The Children and Families Act gives Young Carers (and Parent Carers) similar rights to assessment as other Carers have under the Care Act.

Carers Also Have Other Rights

Right to request flexible working
The Work and Families Act extends the right to request flexible working hours to unpaid Carers of adult partners or relatives, or an adult living at the same address. Employers have to consider this request but is not obligated to accept it.
Right to unpaid leave
The Carers’ Leave Act came into effect on the 6th April 2024. It entitles employees to one week unpaid leave per year, if they are providing or arranging care for someone with long tern support needs. For more information visit carersuk.org
Right to not be discriminated against
The Equality Act recognises the concept of ‘associative’ discrimination in relation to Carers of disabled people. This means that it is illegal to be discriminated against because of your caring role, not only in relation to employment, but also in relation to goods, services, housing and other fields.
Right to be consulted on hospital discharges
The Community Care (Delayed Discharges etc.) Act 2003 gave families a right to be involved and consulted at discharge, and the NHS Constitution recognises that patients and, where appropriate, their families and Carers should be involved in and consulted on all decisions about the patient’s care and treatment. This has now been replaced by The Care Act 2014 which aims to ensure that ‘Cared for’ people have suitable support at home when they are being discharged from hospital.
Right to request a free flu jab
Main Carers for elderly or disabled persons, who may be put at risk if they became ill, or are receiving Carer’s Allowance are eligible for a free flu jab, according to government policy.
Right to request to be identified as a Carer on GP records
The Public Health England Green Book and NICE “Supporting Adult Carers Guidelines” define eligible unpaid Carers as: ‘Those who are eligible for a Carer’s allowance, or those who are the sole or primary Carer of an elderly or disabled person.